Update

Feeling OK, just fighting off a cold now. My side and leg have improved tremendously but unfortunately my left arm is still tingly, and not improving much, if any. I am waiting until my cold goes away and if my arm is still jacked I am probably calling my neuro and setting something up for Cytoxin, we will see though. Definitely will not happen before April 11th though because its not ruining my trip to Phoenix lol. Slacking on the updates but it hasn't changed much lately. Thanks for following!

Update

No Cytoxin (chemo) yet, whoop! I have been feeling a tiny bit better and they want me to hold off and do a MRI in 3 months. If my symptoms get worse at all I have to start ASAP though so fingers crossed. The CCF Mellen Center is awesome and I am very pleased...

Twitter

To all of you who use Twitter, follow MS365.org using the following link! http://twitter.com/MS_dreams

Cytoxan Update

Here is a link to a treatment schedule that is more what my neurologist was speaking of. http://my.clevelandclinic.org/Documents/Multiple_sclerosis_center/Monthly_Cytoxan_7229.pdf

Blah

Incredibly stressed about the whole chemo treatment that I am probably going to be doing. I have an appointment with the Cleveland Clinic March 17th so I am hoping they will ease my mind a bit. Never did I think chemotherapy was a treatment option for MS, as im sure no one else has heard of it either unless they experienced it. I try to be positive always but I will tell you what, it has been hard the last couple days with all of this new info. We found a doc on the clinics site which isnt exactly the same dosage as what my doc mentioned (she mentioned one treatment a month, this doc is for a week straight) but if you want to be depressed please do read, it worked well to depress me but if the Clinic thinks its what I should do instead then we will see what happens. Just don't freak out, like I did, because hopefully I only need once a month not 5 days straight... http://www.clevelandclinic.org/health/health-info/docs/0300/0378.asp

Not so wonderful news...

So I found out today that Avonex is not working for me. Good news is I no longer need a shot every week. Bad news... I need to start on Cytoxan which is a chemotherapy. It is not as potent as a cancer treatment but has some of the effects. Once a month though, wish me luck. I am following up with the Cleveland Clinic's Mellon Center before I start but if that's what will help, bring it on...

Website Update

We have updated our donation page to accept donations via PayPal, Google Checkout, and Check/Money Order. We have had some issues with using PayPal alone and wanted to make the process easier and offer more options. If anyone has issues with the new site setup please let me know. http://www.ms365.org/RegisterDonate/tabid/168/Default.aspx